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Victoria Prunty's avatar

Although my daughter is not physically disabled, taking this reading journey with you to the Bay area was eye-opening. It was familiar in many ways, and I want to reread it to learn more.

I am my daughter's payee, and it hasn't been too difficult for us to work together. However, there is unexpressed resentment because at times she has made threats, through her PSC, to have me replaced. I can see how a third-party payee might work better.

I was grateful to read about your challenges helping A and tips. 😊

Patricia J Wentzel's avatar

thanks Victoria. I'm glad to hear it gave you information you could use in your own quest to help your daughter. Going to see A is always an adventure.

Susan Carpenter's avatar

I believe if you (or his mother) have him sign a form authorizing you to speak on his behalf you might be able to apply without him. He should be eligible for ssi and ssdi which would give him medicare and medi-cal benefits.

I have been my son's representative payee with no problems. If he argues about what he wants "his" money for I tell him it's only for living expenses, clothing, computer, furniture, phone, medical and dental plus small cash allowance for him or I buy him a meal. If he wants no strings on the money he needs to earn his own.

Patricia J Wentzel's avatar

Thanks for sharing your experience Susan. A already receives SSI. The problem is getting Social Security to change him to disabled adult Child Benefits. It's my understanding that if he has a payee that's the person who speaks for him. But this information may be out of date. I'm not sure. I'll have to add that to the list of things to look into. But really his payee should be on top of this. It's their job to handle his money and his relationship with Social Security around his money.

Susan Carpenter's avatar

Since this is an uncommon situation, Social Security gets it wrong as well. They told me we didn't qualify because I was divorced which was incorrect. I had to appeal with a copy of their own POMS (their rules book - you can access it online) Look up disabled adult child. Also if there is another parent with higher benefit, they would be entitled to that benefit. If the marriage lasted 10 years, the parent with caregiver responsibilities is also entitled to higher benefits based on ex-spouse benefit. (if ex spouse benefit is higher - up to 1/2 ex spouse benefit) It's best to go into a local social security office to get these answers.

Susan Carpenter's avatar

I have encountered similar attitude. The best defense is proving them wrong and going to supervisor ir County if needed. This link has good information.

https://www.disabilityrightsca.org/publications/disabled-adult-child-dac-medi-cal-program-benefits

Patricia J Wentzel's avatar

Thanks for sharing the link Susan.

Maureen's avatar

Thanks for sharing your story. A is lucky to have you.